here and here), you know that my friend's daughter Sophie is suffering from Ullrich Congenital Muscular Dystrophy, a diagnosis that only 500-1000 people have in North America. That means not enough people are suffering from the disease to attract the attention or research dollars of the big drug companies or big government, so parents and doctors have to do a lot on their own to raise awareness and funds. If there is one thing that my little blog has done this year, I hope that it has spread awareness about this rare condition. If you know someone who knows someone that might be able to help either through research grants or ability, I hope you will share this information with them. Also, if you know someone whose child has the same symptoms that Sophie had and doctors can't figure out what is wrong with the child, then you might want to share this with them as well. Sophie went over two years going from doctor to doctor without a diagnosis before her mom finally figured out she might have Ullrich CMD. While the diagnosis was devastating, at least they knew what they were fighting and what they needed to do to prolong her life. Recently NBC Bay Area did a feature on Sophie. Please check it out so the news station will continue to do pieces like this that focus on what people are doing as a community to come together and help one of their own.